Brenna’s Beautiful Strength: Living with Harlequin Ichthyosis
Brenna was born with Harlequin ichthyosis, a rare and severe skin condition that makes daily life difficult.
Her parents, Courtney and Evan, quickly learned that raising a child who looks different brings not only medical
challenges but also social ones—especially when others stare, avoid, or make insensitive remarks.
Courtney often finds the reactions of other parents the hardest to bear. Rather than using curiosity as a teaching moment,
many simply turn away. “Why not just say, ‘I don’t know, but we’re all unique’?” she asks.